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On December 6, 2012, the Social Security Administration announced that it would include an additional 35 conditions to its Compassionate Allowance list. These recent additions now bring the total number of Compassionate Allowance listings to 200.

  • Adult Non-Hodgkin Lymphoma
  • Adult Onset Huntington Disease
  • Allan-Herndon-Dudley Syndrome
  • Alveolar Soft Part Sarcoma
  • Aplastic Anemia
  • Beta Thalassemia Major
  • Bilateral Optic Atrophy- Infantile
  • Caudal Regression Syndrome – Types III and IV
  • Child T-Cell Lymphoblastic Lymphoma
  • Congenital Lymphedema
  • DeSanctis Cacchione Syndrome
  • Dravet Syndrome
  • Endometrial Stromal Sarcoma
  • Erdheim Chester Disease
  • Fatal Familial Insomnia
  • Fryns Syndrome
  • Fulminant Giant Cell Myocrditis
  • Hepatopulmonary Syndrome
  • Hepatorenal Syndrome
  • Jervell and Lange-Nielsen Syndrome
  • Leiomyosarcoma
  • Malignant Gastrointestinal Stromal Tumor
  • Malignant Germ Cell Tumor
  • MECP 2 Duplication Syndrome
  • Menkes Disease – Classic or Infantile Onset Form
  • NFU-1 Mitochondrial Disease
  • Non-Ketotic Hyperglycinemia
  • Peritoneal Mucinous Carcinomatosis
  • Phelan- McDermid Syndrome
  • Retinopathy of Prematurity – Stage V
  • Roberts Syndrome
  • Severe Combined Immunodeficiency – Childhood
  • Sinonasal Cancer
  • Transplant Coronary Artery Vasculopathy
  • Usher Syndrome – Type I

More information on Compassionate Allowances can be found on the Social Security Administration website: www.socialsecurity.gov/compassionateallowances.

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